Max and Keira’s law: New ‘opt-out’ organ donor system that presumes all adults agree to donate when they die will be introduced in May
- Draft bill presented in Parliament today show it’ll come into force on May 20
- Named ‘Max and Keira’s law’ in honour of boy who got heart from car crash girl
- System will involve ‘presumed consent’ concept to combat huge waiting lists
- Officials hope the change will mean an extra 700 transplants each year by 2023
A new ‘opt out’ system for organ donation is to be introduced in less than three months, ministers have announced.
According to draft regulations to be presented to Parliament this morning, the new system to address the country’s major shortage of transplant organs will come into force on 20 May.
The new rules are to be named ‘Max and Keira’s law’ – in honour of a boy who received a heart transplant and the girl who donated it.
The system will involve a concept called ‘presumed consent’ – which means all adults will be considered to have agreed to donate their own organs when they die, unless they ‘opted out’.
Under the current ‘opt in’ system only people who are on the donor register, or whose family decide to donate the organs, have a transplant.
Max and Keira’s Law, named after a boy who received a heart transplant from a girl who donated it, cleared the House of Commons last year. Max Johnson (left) was saved by a heart given to him by the family of nine-year-old donor Keira Ball (right) following her death in 2017
Health Secretary Matt Hancock said: ‘Too many people lose their lives waiting for an organ, and I’ve been determined to do what I can to boost organ donation rates.
‘So I’m incredibly proud of the action we are taking with this new law. This is an important step forward in making organ donation easier and more available to those who need it and could help save hundreds of lives every year.
‘I pay tribute to the brave campaigning of families such as Max and Keira’s, whose tireless work on this issue has made a huge difference.’
There are more than 6,000 people currently waiting for an organ in the UK and three people on the waiting list die each day.
Officials hope the change will mean an extra 700 transplants each year by 2023, helping thousands of people across the UK waiting for a transplant.
But they stress that donating organs remains a personal decision. When the new system starts in May families will get the final say.
But doctors hope the ‘presumed consent system’ will mean more relatives give the go-ahead.
They say relatives often decide not to give permission for organs to be removed because they do not know what their loved one would have wanted.
The current system in England relies on people signing up to the organ donor register – and if someone has done so 91 per cent of relatives agree to a donation.
If they have not done so that drops to 47 per cent. Wales, where a presumed consent system has been in place since 2015, has the highest consent rates in the UK.
Anthony Clarkson, director of organ donation and transplantation for NHS Blood and Transplant, said: ‘We hope that the new law encourages more people to record their donation decision and talk about organ donation with their families.
‘It is important for people to know that they can do this at any time before or after the law comes into effect. There is no deadline for making your donation decision.’
Jacob West of the British Heart Foundation added: ‘More than 300 people in the UK are waiting for a heart or a heart and lung transplant in the UK, not knowing when or if they will receive their new organ.
‘Max and Keira’s Law is a lifesaving change in legislation that will offer hope to these people and their families.’