Young girl’s heart beating OUTSIDE of her body 

This disturbing video captures a young girl’s heart beating rapidly outside her body because of a rare condition that should have killed her.

Each time the youngster, believed to be Virsaviya Borun, giggles, her heart can be seen pushing further out of her chest – with only a thin layer of skin keeping it in.

In the footage, a woman, believed to be her mother can be seen prodding her heart as the girl relaxes on her bed.

The seven-year-old, originally thought to be from Russia but now living in Florida, suffers from the rare congenital condition Pentalogy of Cantrell. 

The clip, uploaded onto YouTube and titled ‘VirsaviyaWarrior’, lasts for 43 seconds. No further information is given.

MailOnline reported on Virsaviya’s condition in 2015, throwing her into the limelight as her heartwarming story went viral.

Virsaviya said at the time: ‘I know why I have a heart outside. Because Jesus want [sic] to show he can make special things like me.’

Her intestines are also outside her body as a result of the condition, which occurs in an estimated 5.5 in one million live births, figures suggest. 

Doctors warned her mother, Dari Borun, that Virsaviya would die. The child also goes by the biblical name Bathsheba.

But seven years later, she is reportedly a lively girl who loves Beyonce, enjoys drawing ponies and attending art classes. 

The condition’s most severe expression is when the heart is completely or partially displaced outside the chest – known as ectopia cordis.

Experts say prognosis is generally poor and depends on the severity. Most sufferers are stillborn or die within the first few days of their life.

Each time the unidentified youngster giggles, her heart can be seen pushing further out of her chest

In the footage recorded by a woman, believed to be her mother, she can be seen prodding the heart as the girl relaxes on her bed. Each time the unidentified youngster giggles, her heart can be seen pushing further out of her chest

The family originally moved to Boston after finding a doctor willing to treat her rare ailment which required surgery.

But doctors warned she was unable to undergo surgery because of her high blood pressure. It is not known if her condition has changed.

Ms Borun, a single mother, previously appealed for fundraising, asking for donations to cover her daughter’s expensive medical bills.

Thanks to kind-hearted strangers, she was able to raise $71,224 (£52,670). No donations have been recorded in 12 months.

They were forced to move to Florida in the summer of 2015 because her life was in danger in the cold climate, sources revealed.

Now, living in Hollywood – 20 miles (32km) from Miami, she doesn’t get ill as often because her heart feels warm. 

At the time, it was revealed that Virsaviya did not currently attend school because of her condition. It is unsure whether her scenario has changed. 

WHAT IS THIS CONDITION?

Pentalogy of Cantrell is a rare disorder that is present at birth. It is characterized by a combination of birth defects that can involve the breastbone, the sternum, the diaphragm, the thin membrane that lines the heart, the abdominal wall, and the heart.

Pentalogy of Cantrell occurs with varying degrees of severity. Some infants may have mild defects, while others may have serious, life-threatening complications.

The most severe expression of Pentalogy of Cantrell occurs when the heart is completely or partially displaced outside the chest, which is known as ectopia cordis.

Infants with Pentalogy of Cantrell can have a wide variety of congenital heart defects including a ‘hole in the heart’ and abnormal location of the heart on the right side of chest instead of the left, among others.

The exact cause of Pentalogy of Cantrell is unknown. Most cases occur randomly for no apparent reason. One theory suggests that the symptoms of Pentalogy of Cantrell occur due to an abnormality in the development of embryonic tissue early in the pregnancy.

The condition affects boys and girls in equal numbers. The exact prevalence is unknown, but estimated to be 5.5 in one million live births.

Source: National Organization For Rare Diseases 

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