Pictured: Alfie Evans
A toddler with a mystery degenerative brain disorder is letting his parents know he wants to live, his father has said outside court.
Alfie Evans has been in a coma after being struck down by an unknown progressive neurological disease and now needs round the clock care at Alder Hey Children’s Hospital in Liverpool.
Medics have applied to withdraw life support to let the child die peacefully as they say he will eventually die from the mysterious illness he has been suffering from for the past year.
His family are appealing the decision to buy him more time after an Italian hospital has offered to treat Alfie.
Speaking outside the High Court today as his parents launched a challenge, Thomas Evans said: ‘Months ago we were told he was coming to the end of his life, but he is still here.
‘He letting us know he wants to live. I have been with him every single day for a year and I have seen him progress with his breathing, his movement, his growth and his health.
‘He is still here and he is fighting.’
Asked what he think will happen if Alfie is able to go to Italy he said: ‘I believe there is big potential. I can’t say he is going to get better because he is very ill.
‘But I am 90 per cent sure he will wake up. I see him every single day and I see life.’
Tom and Kate Evans leave the High Court in London as a High Court judge is analysing preliminary issues in the case of their sick 19-month-old son Alfie, who is at the centre of a life-support treatment dispute
He believes if he was to undergo surgery in Italy, Alfie will wake up and doctors will be able to get a conclusive diagnosis of what has caused is degenerative brain disorder.
Mr Evans said: ‘We haven’t been able to spend time alone with him because there always has to be a nurse with him in the room and you feel awkward, even though your shouldn’t.’
During today’s hearing judge Mr Justice Hayden offered to visit Alfie in hospital before the full trial in February next year.
Mr Evans said: ‘I would be overwhelmed for him to come and see him.
‘It’s a chance for him to step in my boots and see what I see everyday. Alfie will show the judge everything he has go, and show him he has got life.’
Asked if he thought the Alder Hey hospital had done enough for his son, Mr Evans said: ‘No, but I respect and appreciate them for everything they have done for him, but I don’t thing they have exhausted every option.’
Alfie’s is due go to trial at Liverpool family court on February 1, in the New Year.
During today’s hearing judge Mr Justice Hayden offered to visit Alfie in hospital before the full trial in February next year
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