Gay man’s heartbreaking Twitter thread recalls the torment of the AIDS crisis

A Boston man’s viral Twitter thread serves as a heartbreaking reminder of how terrible the height of the AIDS epidemic truly was for the gay community.

Tucker Shaw was struck when he overheard a young gay man discussing the AIDS crisis with his boyfriend, asserting that, as terrible as it was, it paved the way for things to better for the gay community ‘in the long run’.

Tucker, 49, said that he doesn’t necessarily disagree with that, but he was taken aback that the man felt such a disconnect from AIDS and the havoc it wrecked — considering the height of the crisis wasn’t actually so long ago, and remains very much in the hearts and minds of those who lived through it.

Viral: Tucker Shaw from Boston tweeted about a conversation he heard on his commute

Hot take: A young gay man was 'talking about AIDS, in a scholarly way,' saying it 'galvanized the gay community' and 'spurred change'

Hot take: A young gay man was ‘talking about AIDS, in a scholarly way,’ saying it ‘galvanized the gay community’ and ‘spurred change’

Two to three decades: What struck him was the use of the phrase 'the long run,' considering the worst of the epidemic was not so long ago

Two to three decades: What struck him was the use of the phrase ‘the long run,’ considering the worst of the epidemic was not so long ago

Huh... Tucker said it's not that he necessarily disagreed, but he seemed taken aback by how distant the young man seemed to feel from the epidemic

Huh… Tucker said it’s not that he necessarily disagreed, but he seemed taken aback by how distant the young man seemed to feel from the epidemic

Looking back: He went on to recall in heartbreaking detail what it was like to know so many people who died from the disease in a short period of time

Looking back: He went on to recall in heartbreaking detail what it was like to know so many people who died from the disease in a short period of time

‘I overheard a young man on the train on the way home today, talking to another young man. Holding hands. In college, I guessed. About that age anyway. Much younger than I am,’ Tucker kicked off his thread, which has reached 50,000 likes and counting.

In the thick of it: Tucker, 49, came of age in the late 80s and was in his 20s in the 90s

In the thick of it: Tucker, 49, came of age in the late 80s and was in his 20s in the 90s

‘He was talking about AIDS, in a scholarly way. About how it had galvanized the gay community. How it had spurred change. Paved the way to make things better, in the long run,’ he wrote. ‘The long rung.’

‘Maybe he’s right. I don’t know. It’s not the first time I’ve heard the theory. He spoke with clarity and with confidence. Youthful, full of conviction. But.

‘Remember how terrible it was, not that long ago, during the worst times. How many beautiful friends died. One after the other. Brutally. Restlessly. Brittle and damp. In cold rooms with hot lights. Remember? ‘

He then launched into deeply personal remembrances, looking back at his own losses when AIDS was a death sentence.

‘Some nights, you’d sneak in to that hospital downtown after visiting hours, just to see who was around. It wasn’t hard.  

‘You’d bring a boom box. Fresh gossip. Trashy magazines and cheap paperbacks. Hash brownies. Anything. Nothing. 

Recollections: His remembrances became deeply personal as he looked back

Recollections: His remembrances became deeply personal as he looked back

Deadly: He talked about visiting friends who were sick at the hospital

Deadly: He talked about visiting friends who were sick at the hospital

Spread: He mentioned knowing multiple people there at a time

Spread: He mentioned knowing multiple people there at a time

Grief: He'd be haunted by friends he lost to the disease

Grief: He’d be haunted by friends he lost to the disease

Tragic: It touched his lives in a lot of ways as thousands died

Tragic: It touched his lives in a lot of ways as thousands died

‘You’d get kicked out, but you’d sneak back in. Kicked out again. Back in again. Sometimes you’d recognize a friend. Sometimes you wouldn’t. 

‘Other nights, you’d go out to dance and drink. A different distraction. You’d see a face in the dark, in the back of the bar. Is it you? Old friend! No. Not him. Just a ghost. 

‘At work, you’d find an umbrella, one you’d borrowed a few rainstorms ago from a coworker. I should return it, you’d think. No. No need. He’s gone. It’s yours now.  

‘One day you’d get lucky and meet someone lovely. You’d feel happy, optimistic. You’d make plans. 

‘Together, you’d keep a list of names in a notebook you bought for thirty cents in Chinatown so you could remember who was still here and who wasn’t, because it was so easy to forget. 

‘But there were so many names to write down. Too many names. Names you didn’t want to write down. 

‘When he finally had to go too, you got rid of the notebook. No more names. 

Epidemic: From the 80s to 2002, the total AIDS-related deaths in the US totaled 501,669

Epidemic: From the 80s to 2002, the total AIDS-related deaths in the US totaled 501,669

Harsh: In 1989, deaths in the US skyrocketed to 14,544 over the course of the year — and it kept climbing, to 18,447 in 1990, 20,454 in 1991, 23,411 in 1992, and 41,920 in 1993

Harsh: In 1989, deaths in the US skyrocketed to 14,544 over the course of the year — and it kept climbing, to 18,447 in 1990, 20,454 in 1991, 23,411 in 1992, and 41,920 in 1993

Relationships: Tucker's story turned especially tragic when he recalled falling in love

Relationships: Tucker’s story turned especially tragic when he recalled falling in love

Unstoppable: They'd write down names of people to remember who was still living and who died

Unstoppable: They’d write down names of people to remember who was still living and who died

Overwhelming: There ended up being too many people to keep track of

Overwhelming: There ended up being too many people to keep track of

‘Your friends would come over with takeout and wine and you’d see how hard they tried not to ask when he was coming home because they knew he wasn’t coming home. No one came home. You’d turn 24. 

‘When he’d been gone long enough and it was time to get rid of his stuff, they’d say so. It’s time. And you’d do it, you’d give away the shirts, sweaters, jackets. Everything. 

‘Except those shoes. You remember the ones. He loved those shoes, you’d say. We loved those shoes. I’ll keep those shoes under the bed. 

Remember how terrible it was, not that long ago, during the worst times. How many beautiful friends died. One after the other. Brutally. Restlessly

‘You’d move to a new neighborhood. You’d unpack the first night, take a shower, make the bed because it’d be bedtime. You’d think of the shoes. For the first time, you’d put them on. Look at those shoes. What great shoes.

‘Air. You’d need air. You’d walk outside in the shoes, just to the stoop. You’d sit. A breeze. A neighbor steps past. “Great shoes,” she’d say. But the shoes are too big for you. 

‘You’d sit for a while, maybe an hour, maybe more. Then you’d unlace the shoes, set them by the trash on the curb. You’d go back upstairs in your socks. The phone is ringing. More news. 

‘The long run. Wasn’t that long ago,’ he concluded.

Awful: Eventually, his boyfriend passed from the disease, too

Awful: Eventually, his boyfriend passed from the disease, too

So young: All of this happened before he even turned 24

So young: All of this happened before he even turned 24

Relate: Tucker's thread has gone viral and earned quite a few replies

Relate: Tucker’s thread has gone viral and earned quite a few replies

Inspiring: Others chimed in with their own stories of loss and heartbreak

Inspiring: Others chimed in with their own stories of loss and heartbreak

Tucker, who came of age in the late 80s, clearly experienced firsthand the horror of the AIDS crisis, and seemed to find it troubling that young gay men today could discuss it so dispassionately, as something that happened a long time ago.

WHAT IS AIDS? 

An estimated 36.7 million adults and children worldwide have HIV, including at least 88,800 in the UK and around one million in the US.

The virus progressively damages the cells in the immune system weakening the body’s ability to fight infections.

Without treatment, this leads to AIDS — the collective name for a series of life-threatening infections which the weakened immune system cannot withstand.

AIDS stands for Acquired Immune Deficiency Syndrome.

The UN has a goal of ending AIDS as a public health threat by 2030, but HIV infections must be limited to 500,000 per year globally by 2020. 

Last year’s 1.8 million new infections showed unless something ‘completely drastic’ happened, officials will remain far away from this target, experts say. 

AIDS first came to the US in the 1960s, but it wasn’t recognized until the early 80s, when it started to spread among large clusters of young gay men in Los Angeles, New York City, and San Francisco.

Other cases popped up in women, as well as children who received blood transfusions — but it was transmitted most frequently within the gay community.

Because of that, and widespread homophobia, AIDS was dismissed by many as a ‘gay disease,’ and it took years for substantial funding to be directed toward research of the disease and finding a cure. 

Throughout the ’80s, the number of AIDS-related deaths grew annually. According to FACT, 2,304 people died in the US in 1983. The number rose to 4,251 in 1984 and 5,636 in 1985 (including Rock Hudson).

In 1989, it skyrocketed to 14,544 AIDS-related deaths over the course of the year — and it kept climbing, to 18,447 in 1990, 20,454 in 1991, 23,411 in 1992, and 41,920 in 1993.

By 2002, the total deaths since the epidemic began reached 501,669.

Crushing: He looked back on the shoes he saved to remember a loved on

Crushing: He looked back on the shoes he saved to remember a loved on

Affected: The story illustrates that the epidemic is still very much in living memory

Affected: The story illustrates that the epidemic is still very much in living memory

Changes: There have been vast improvement in medical treatment for AIDS and AIDS-related illnesses, drastically shrinking the number of annual deaths

Changes: There have been vast improvement in medical treatment for AIDS and AIDS-related illnesses, drastically shrinking the number of annual deaths

Remember: But it's not gone, and in 2015, 6,465 people died from HIV in the US

Remember: But it’s not gone, and in 2015, 6,465 people died from HIV in the US

HIV TRANSMISSION AND PREVENTION

You can get or transmit HIV only through specific activities, most commonly through sexual behaviors and needle or syringe use.

The FDA has approved more than two dozen antiretroviral drugs to treat HIV infection. 

They’re often broken into six groups because they work in different ways. 

Doctors recommend taking a combination or ‘cocktail’ of at least two of them.

Called antiretroviral therapy, or ART, it can’t cure HIV, but the medications can extend lifespans and reduce the risk of transmission.

1) Nucleoside/Nucleotide Reverse Transcriptase Inhibitors (NRTIs)

NRTIs force the virus to use faulty versions of building blocks so infected cells can’t make more HIV.

2) Non-nucleoside Reverse Transcriptase Inhibitors (NNRTIs)

NNRTIs bind to a specific protein so the virus can’t make copies of itself.

3) Protease Inhibitors (PIs)

These drugs block a protein that infected cells need to put together new copies of the virus.

4) Fusion Inhibitors

These drugs help block HIV from getting inside healthy cells in the first place.

5) CCR5 Antagonist

This stops HIV before it gets inside a healthy cell, but in a different way than fusion inhibitors. It blocks a specific kind of ‘hook’ on the outside of certain cells so the virus can’t plug in.

6) Integrase Inhibitors

These stop HIV from making copies of itself by blocking a key protein that allows the virus to put its DNA into the healthy cell’s DNA. 

There have been vast improvement in medical treatment for AIDS and AIDS-related illnesses, drastically shrinking the number of annual deaths — which explains why the young man Tucker encountered didn’t seem to see the disease as a threat.

But it’s not gone, and there’s still no definitive ‘cure’. And according to the CDC, in 2015, 6,465 people died from HIV in the US. 

Many people who encountered Tucker’s thread commented to share their own memories of the epidemic at its worst, standing as a reminder that the crisis isn’t so far back in history.

‘I miss my brother. He died 25 years ago along with all of his sweet friends. The long run,’ wrote one woman, prompting others to write about brothers they lost.

‘Thank you for this beautiful piece. It really resonates with me. I am one of the lucky survivors; 30 years HIV positive. I am remembering today a young man who took his own life after a diagnosis of Kaposi’s sarcoma,’ wrote one man.

Kaposi’s sarcoma is a type of cancer that causes skin legions, which can be a symptom of AIDS and was one of the first signs of the disease in the ’80s.

‘I remember when young men first began dying. Families would say “he had cancer” but there was always something not quite spoken. I had a work friend whose son died very early on from AIDS and she kept it to herself for so long because she feared her beloved son being judged,’ recalled one woman.

‘I stopped counting at thirty. Many friends had longer lists but thirty was where I drew the line. More died after I stopped but I couldn’t count that high. My heart wouldn’t accept it,’ added another commenter.

‘It seems like yesterday when my cousin was dying in a San Francisco hospital. They told us not to touch him. I sat on his bedside & held his hand. 

‘He did not want his mother to know he was there. He was alone when he died. It haunts me to this day. He deserved better. I loved him,’ remembered yet another. 



Read more at DailyMail.co.uk