Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: ‘You feel like you’re being burned alive’

Tara Moss has been living with a disorder that leaves her in constant pain for eight years. 

The model-turned-author suffers from Complex Regional Pain Syndrome (CRPS) and it has left her at times bedridden, at others using a wheelchair or cane to get around.

The 50-year-old shared with Stellar Magazine this week that while she has come a long way, she still deals with the debilitating symptoms. 

‘Your body is in fight or flight and you feel like you’re being burned alive’ she told the publication. 

‘Your body doesn’t know you’re not being burned alive. You’re actually having that experience in a real sense’ she continued. 

‘You’re not healing because your body is busy trying to give you energy to get out of your life-threatening situation’.

Tara has recently changed her name to Tara Rae Moss and says it reflects how her life has changed. 

‘I don’t feel like “Tara” in the same way, and I’m embracing it rather than denying it’ she said. 

Tara Moss has been living with a disorder that leaves her in constant pain for eight years.  Pictured in this week’s issue of Stellar Magazine

Over the years, Tara has undergone several types of therapy, including foot spas, physiotherapy, and body work.

The Canadian-Australian described her long journey, last year, writing What a remarkable time in my life. 

‘Week seven at the Spero Clinic, after perhaps 150 hours of treatments, care, pain and miracles.’

Tara went on to say that such a simple task as walking without a mobility aid up stairs is a dream come true for her.

The model-turned-author suffers from Complex Regional Pain Syndrome (CRPS) and it has left her at times bedridden, at others using a wheelchair or cane to get around

The model-turned-author suffers from Complex Regional Pain Syndrome (CRPS) and it has left her at times bedridden, at others using a wheelchair or cane to get around

The 50-year-old shared with S tellar Magazine this week that while she has come a long way, she still deals with the debilitating symptoms

The 50-year-old shared with S tellar Magazine this week that while she has come a long way, she still deals with the debilitating symptoms

‘I walked for over an hour this week, on my own. It was beyond. Treatment is tough, but so worth it,’ she declared.

Tara has been open about her struggle with pain over recent years, documenting her use of a cane and wheelchair on Instagram.

In 2021, the model gave a tell-all interview where she revealed that being in constant pain has changed the way her brain works. 

The raven-haired beauty told Body and Soul magazine: ‘I’ve come to learn that chronic pain is really neuroplasticity – brain changes – gone wrong.

‘Now I want to use the brain’s adaptability to work in my favour, and retrain it not to be so loud and vocal about my pain’. 

'Your body is in fight or flight and you feel like you're being burned alive' she said

‘Your body is in fight or flight and you feel like you’re being burned alive’ she said

Elsewhere in the interview, the author was critical of the lack of accessible spaces for disabled people. 

Tara began modelling at the age 14, before turning her attentions to writing, publishing her first novel, Fetish, in 1999. 

She is now a bestselling author who has published 13 books in 18 countries and 13 languages around the world, and is considered one of Australia’s best crime novelists.   

The former model lives in the Blue Mountains with her Australian poet husband Berndt Sellheim and their 12-year-old daughter Sapphira. 

Read more in this week's issue of Stellar Magazine

Read more in this week’s issue of Stellar Magazine 

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