Bianca Saez has the worst case of Tourette’s ever seen in Australia has made peace with condition

‘What doesn’t kill me makes me stronger’: Woman with the worst case of Tourette’s ever seen in Australia reveals she’s made peace with her condition – after radical brain surgery failed

  • Bianca Saez, 27, was diagnosed with Tourette Syndrome at the age of three
  • She would explode and throw punches into the wall and swear at people nearby
  • Eleven years after her failed brain surgery, Bianca has accepted her condition 

A woman who was diagnosed with the worst case of Tourette ever seen in Australia has made peace with her condition after radical brain surgery failed.

Bianca Saez was diagnosed with Tourette Syndrome when she was just three-years-old, which saw her lose control by punching and scratching herself and loved ones.

The 27-year-old from Brisbane would sometimes explode and throw punches and rip tiles from walls. She would also launch profanities at people nearby. 

Bianca Saez was diagnosed with Tourette Syndrome when she was just three-years-old which saw her lose control by punching and scratching herself and loved ones

In 2008, Bianca underwent extreme radical brain stimulation surgery, the first of its kind in Australia

In 2008, Bianca underwent extreme radical brain stimulation surgery, the first of its kind in Australia

In a 60 Minutes episode premiering on Sunday, Bianca will be sharing how she has come to accept her condition 11 years on after her failed brain surgery.

‘All I want to do is create awareness,’ Bianca says in the preview. 

‘What doesn’t kill me makes me stronger.’

In 2008, Bianca underwent extreme radical brain stimulation surgery, the first of its kind in Australia, which was meant to reset her brain cells to stop her from hitting herself.

Miraculously, Bianca was Tourette free for two weeks after the surgery where she wasn’t hitting or swearing at anyone.  

‘I’m so grateful for this,’ Bianca told 60 Minutes host Tara Brown back in 2008. 

‘I can’t believe how much I’m grateful for having this operation because it’s changed my whole entire life and I’m so proud of myself for doing it.’

The 27-year-old from Brisbane would sometimes also explode and throw punches into the wall and launch profanities at people nearby

The 27-year-old from Brisbane would sometimes also explode and throw punches into the wall and launch profanities at people nearby

Soon enough, Bianca contracted a staph infection which meant doctors had to remove her electrodes. 

However, things did not go according to plan and Bianca lost all hope that she would be cured. 

The episode will air on Sunday at 8.30pm.  

What is Tourette Syndrome? 

Tourette Syndrome (TS) is a neuro developmental disorder characterized by repeated involuntary movements (motor tics) and uncontrollable sounds (vocal or phonic tics).

Symptoms range from very mild to quite severe and the majority of cases also have other co-morbid conditions with significant impact on their lives. 

The first symptoms of TS are usually facial tics – commonly eye blinking. 

Other motor tics may appear later, such as head jerking, neck stretching, foot stamping, or body twisting and bending.

It is not uncommon for a person with TS to continuously clear his or her throat, cough, sniff, grunt, yelp, bark, or shout. 

A person with TS may touch other people excessively or repeat actions obsessively and unnecessarily. 

A few patients with TS demonstrate self-harming behaviours such as lip and cheek biting and head banging. 

Similarly, involuntary swearing (coprolalia) can occur in a subgroup of people with TS. 

                                                                                       Source: Brain Foundation Australia 

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